Sorry for the delay with the updates, we couldn't get internet anywhere. I, however, just discovered it by accident in the hospital cafeteria. So, that's awesome. Anyways, wanted to update you on anything new since the last post...
We still haven't talked to the neurologist, he's supposed to be in tomorrow to discuss the rest of the test results with Jeremy and Christina. It's been frustrating not being able to see him, but from what we can tell, it most likely means we're not the priority, which is a good sign considering. If we had urgent news, we would have known by now. No news is good news? We'll see. They told us that they wanted to discharge the baby on Monday, if he was eating consistently, and everything was stable.
We've had a couple problems with his eating, at times he'll eat a lot, and then nothing at all. It's been hard because he's on medication, which makes him drowsy, so that could factor into his appetite. Either way, it's not exactly consistent, and that could keep us here a couple more days. Pray that everything remains stable, that he starts eating regularly, and for a discharge on Monday.
Thanks again,
Debi
Sunday, November 22, 2009
Thursday, November 19, 2009
A Quick Update
We got some news today, it's still inconclusive, but it is something. We're still waiting on the majority of the test results, and we should know more by tomorrow, but as of right now, this is what we know...
The results for the EEG showed that Caleb does have some kind of seizure disorder. The question now is whether or not it's a normal seizure disorder that can be controlled with medication, or if his seizures are being triggered by other things. We're hoping and believing for the former. I know it sounds weird, but considering his symptoms and what we're here for, that would be ideal. If this is the case, then he'll have to take medication but he'll be able to live a normal and healthy life. And it could go away at any time. The doctor was really positive about the results so far and said everything is turning out favorably. Now we're just waiting on further tests to rule out the other possibility.
The preliminary report of the MRI showed his brain was developing normally, and the doctor could see no damage or lesions on the brain. Also, he started eating from the bottle tonight, and Christina will try breast feeding tomorrow. So for now, we're just waiting to get the results for the blood tests and the more extensive look at the MRI, which should happen sometime tomorrow. If everything turns out normal, and he continues to eat, they're looking to discharge him on Monday.
Continue to pray for favorable results, healthy eating, and an early discharge. We love you all.
Debi
The results for the EEG showed that Caleb does have some kind of seizure disorder. The question now is whether or not it's a normal seizure disorder that can be controlled with medication, or if his seizures are being triggered by other things. We're hoping and believing for the former. I know it sounds weird, but considering his symptoms and what we're here for, that would be ideal. If this is the case, then he'll have to take medication but he'll be able to live a normal and healthy life. And it could go away at any time. The doctor was really positive about the results so far and said everything is turning out favorably. Now we're just waiting on further tests to rule out the other possibility.
The preliminary report of the MRI showed his brain was developing normally, and the doctor could see no damage or lesions on the brain. Also, he started eating from the bottle tonight, and Christina will try breast feeding tomorrow. So for now, we're just waiting to get the results for the blood tests and the more extensive look at the MRI, which should happen sometime tomorrow. If everything turns out normal, and he continues to eat, they're looking to discharge him on Monday.
Continue to pray for favorable results, healthy eating, and an early discharge. We love you all.
Debi
My Little Man
Hey Everybody, just wanted to keep you all updated. Caleb is doing really good. Tonight was a really good night. They finally took out the IV in his head, which is good cause it was really hard to see him like that. One of his arms is pretty swollen due to all the IV's he's had in it and his poor little veins can only handle so much, but that will go down shortly. He opened up his eyes tonight and was wide awake for awhile as we got to hold him and talk to him. He only got upset a couple of times but i was able to console him and calm him down by singing him a cuban lullaby (which of course has to do with food) he is definitely a Hogue, haha. He has not had any more seizures since he's been at the hospital, which is awesome. He is such a tough little guy. It's so hard to see him like this, with IV's and cords coming out of everywhere, but he is doing such a good job through it all. He has two little neighbor girls that are premie's and it is so sad. They both barely weigh a pound and look so tiny and fragile. My heart truly goes out to those parents. I think about all Caleb has been through from the high risk pregnancy till now, and even though it's been difficult and at times felt like a complete roller coaster, I think about how much worse it could be. I just praise God for everything He has brought Caleb through and the continual grace He gives us. I am so thankful for our "little miracle". It's crazy because even though it's so hard to see him in the NICU, I have a complete peace and am full of excitement because I know God has big plans for my little guy. No matter what adversities he might face, God's hand is upon him and absolutely nothing can stop that.
Jeremy
Wednesday, November 18, 2009
Caleb
Hey everyone, this is Jeremy's sister. We want to make sure everyone is being informed, but that has been relatively impossible with everything that's been going on. So we decided to start this blog for Caleb, and will continue to update as we get information.
First off I want to say, from the bottom of my heart, thank you for your prayers for Caleb, Jeremy, and Christina. They've all gone through a lot these past few days and it has given them so much strength, knowing that so many people are praying.
For those who maybe don't know what's going on, I'll give a brief recap. Caleb Michael Hogue was born Monday morning at 10:29, he was completely healthy. He weighed 6 lbs 7 ounces, 19 inches long. Sometime early Tuesday morning he stopped breathing properly, as a result he wasn't getting enough oxygen, and he still wasn't eating. They put him in an incubator, and soon after his breathing returned to normal. However, a little while after that he had a seizure, and then another one. The hospital he was at in Victorville didn't have a neurology department, so he was transported to Loma Linda Children's Hospital. Jeremy came with him, but Christina was unable to because she had just had a C-section and couldn't be released yet. He was taken to the neonatal ICU and has been there ever since. Now for the updates...
The situation has been hard and exhausting for them, especially being separated during it, but we have been blessed SO much in the past few days, all the small details have added up. First off, we're getting housing at the Ronald McDonald House which is so incredibly amazing. It's only $10 a night, and everything is free. They have a kitchen full of food, and the whole thing is designed to look like a normal house. Seems like a small and trivial detail, but in times when everything is chaotic and foreign, it does wonders for the soul to have something comfortable.
And speaking of amazing, the hospital is incredible as well. The baby is receiving the best treatment possible, and Jeremy gets to stay with him whenever he wants (except for a couple hours here and there while they switch things out). The baby has been doing great, we haven't had any further complications, and right now we're just waiting on test results. We did get the results for his spinal tap, and it turned out perfectly. We know he doesn't have any serious infections, so that rules out meningitis, etc. Which is great. He hasn't been able to eat because of testing, but he's been getting all the nutrients he needs through IV.
Also, Christina was released from the hospital in Victorville this morning, she's now down here with me and Jeremy. This is a huge, huge blessing. The situation has been hard enough on her, but being that far away from both her baby and husband during it all was just...it was hard, on both of them. This also means Caleb can start eating, so again a huge blessing. That's about all we know right now, we'll continue to update as we know things and are able to get to a computer. Again, thank you so so so much for your support, love, and prayers. It means everything. And just know that God is absolutely working throughout it all. We all have an overwhelming peace, and we can see and feel everything that He's doing. His hand is undeniable, from the small details to the big. Thank you for being a part of that.
For those who maybe don't know what's going on, I'll give a brief recap. Caleb Michael Hogue was born Monday morning at 10:29, he was completely healthy. He weighed 6 lbs 7 ounces, 19 inches long. Sometime early Tuesday morning he stopped breathing properly, as a result he wasn't getting enough oxygen, and he still wasn't eating. They put him in an incubator, and soon after his breathing returned to normal. However, a little while after that he had a seizure, and then another one. The hospital he was at in Victorville didn't have a neurology department, so he was transported to Loma Linda Children's Hospital. Jeremy came with him, but Christina was unable to because she had just had a C-section and couldn't be released yet. He was taken to the neonatal ICU and has been there ever since. Now for the updates...
The situation has been hard and exhausting for them, especially being separated during it, but we have been blessed SO much in the past few days, all the small details have added up. First off, we're getting housing at the Ronald McDonald House which is so incredibly amazing. It's only $10 a night, and everything is free. They have a kitchen full of food, and the whole thing is designed to look like a normal house. Seems like a small and trivial detail, but in times when everything is chaotic and foreign, it does wonders for the soul to have something comfortable.
And speaking of amazing, the hospital is incredible as well. The baby is receiving the best treatment possible, and Jeremy gets to stay with him whenever he wants (except for a couple hours here and there while they switch things out). The baby has been doing great, we haven't had any further complications, and right now we're just waiting on test results. We did get the results for his spinal tap, and it turned out perfectly. We know he doesn't have any serious infections, so that rules out meningitis, etc. Which is great. He hasn't been able to eat because of testing, but he's been getting all the nutrients he needs through IV.
Also, Christina was released from the hospital in Victorville this morning, she's now down here with me and Jeremy. This is a huge, huge blessing. The situation has been hard enough on her, but being that far away from both her baby and husband during it all was just...it was hard, on both of them. This also means Caleb can start eating, so again a huge blessing. That's about all we know right now, we'll continue to update as we know things and are able to get to a computer. Again, thank you so so so much for your support, love, and prayers. It means everything. And just know that God is absolutely working throughout it all. We all have an overwhelming peace, and we can see and feel everything that He's doing. His hand is undeniable, from the small details to the big. Thank you for being a part of that.
Debi
Subscribe to:
Posts (Atom)